This
is a heartbreaking story of Roona Begum, a baby suffering from hydrocephalus, a
rare but treatable disorder that causes fluid to build up in the brain. Runa
Begum, a 18-month-old girl from Tripura, is suffering from a rare medical
condition, Hydrocephalus, which causes her head to swell up to a huge size.
Hydrocephalus also referred to as "water on the brain" is a medical
condition that causes abnormal accumulation of fluid in the brain's cavities.
Runa's mother Fatima said that her daughter has been suffering from
Hydrocephalus since she was born and doctors are unable to cure or improve her
condition.
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Day by day, Roona's dad saw his baby's head growing too big after she was born. It's very difficult to watch her in pain |
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Fatima
loves her child and is willing to sacrifice all to get her into medical
fitness, but says there is no money to treat her baby. |
Her father, Abdul Rehman, said they are unable
to bear the medical expenses due to financial constraints. He said that only a
"miracle" can save his daughter. "Day by day, I saw her head
growing too big after she was born. It's very difficult to watch her in pain. I
pray several times a day for a miracle -- for something to make my child
better," Rehman told AFP. Rehman, who works in a brick factory, earns
approximately ₹150 per day. When doctors suggested
that he take Runa to a specialist in Kolkata, he denied saying he did not have
enough money for this. Due to Hydrocephalus, Runa's head swelled to a
circumference of 91-centimetres (36-inches) putting pressure inside her skull,
according to AFP.
Doctors have said that it's too late to save her life, as
surgery could be fatal. "It is too late to do anything now. The brain will
be damaged, and draining the fluid can cause problems by causing the brain to
collapse and bleed. Runa should really be left untreated. She will not make any
recovery and will not ever live a life of any independence," Sanj Bassi,
Consultant Adult and Paediatric Neurosurgeon at Kings College Hospital told a
news housel.
Every year more than 400,000 children develop this condition and a
majority of them live in developing countries. Hydrocephalus goes untreated
because neurosurgical care is not available in these countries.
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Roona Begum suffers a rare medical condition known as Hydrocephalus |
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Hydrocephalus is a rare medical condition, which causes Roona Begum's head to swell up to a huge size. |
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Roona's mother, Fatima says her baby has been suffering from hydrocephalus since she was born. |
According to
MedicineNet.com, Hydrocephalus is a condition that affects about one out of
every 500 children. Rapid increase in head circumference or abnormal huge head
size is the most obvious symptom of hydrocephalus that can be identified in
children or infants. Other symptoms includes vomiting, irritability, seizures,
sleepiness, sunsetting eyes and separated sutures
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